ARC Lifetime Care for Adults with Acquired Disability and High Care Needs Project

 
The care of adults with acquired disability and high care needs resulting from injury or serious illness is a topic of public concern in Australia and internationally. This three-year Australian Research Council (ARC) Linkage project aims to identify effective mechanisms for the financing and provision of appropriate and sustainable lifetime care and support. The research will examine the policy, program and financing features of existing lifetime care and support for adults with acquired disability and how these systems operate at the service delivery level. This Queensland-based study will provide a strategic foundation for policy development and enhanced lifetime care arrangements in Australia more broadly. 


Research Team


Research Activities

The study involves two components

  1. The first component involves a policy mapping exercise which aims to identify the distinguishing features of current systems of financing and provision of lifetime care and support for adults with acquired disability and high care needs. This component involves both interviews with key informants and an on-line survey.

  2. The second component of the study involves a series of individual case studies incorporating interviews with individuals with acquired brain injury, acquired spinal cord injury, Multiple Sclerosis, Huntington’s Disease and Motor Neurone Disease and their families, care providers and financial or trust managers. This component is designed to understand how systems of financing and provision of lifetime care and support operate and interact at the service delivery level. 


Findings and Results

Research findings will be posted on this site as they are available.


Publications 

The politics of need: Perspectives on a proposed National Disability Long-term Care and Support Scheme in Australia. Social Policy and Society,vol. 11, in Press, 2012
Foster M., Henman P., Fleming J., Tilse, C

Models of Governance in Long-term Disability Care and Support: A Framework for Assessing and Reforming Social Policy , Social Policy Research Paper No. 2, Social Policy Unit, University of Queensland, September 2011
Henman P., Foster M.

Financing and Delivering Services for Adults with Acquired Disability and High Care Needs in Queensland - Results from an Online Survey,Social Policy Research Paper No. 1, Social Policy Unit, University of Queensland, July 2010
Henman P., Foster M., Fleming J., Tilse C., Harrington R., Thornton S.

Financing and Delivering Services for Adults with Acquired Disability and High Care Needs: Results from an On-line Survey (Four page summary)
Henman P., Foster M., Fleming J., Tilse C., Harrington R.

Meeting Lifetime Care Costs, Australian Policy Online, Commentary, November 2009
Harrington, R.

 
Presentations

2011

Foster M, Henman P. Seminar presentation: ‘Financing and management of lifetime care for adults with acquired disability and high care needs’ Queensland Department of Communities, Care Services, 9 September 2011, Brisbane.
 
Henman P, Foster M, Fleming J, Tilse, C, Harrington R,  Thornton S. Paper presentation: ‘An overview of the finance and governance of Queensland organisations providing disability care and support services’ School of Social Work and Human Services, Research Symposium,12 July 2011, University of Queensland, Brisbane.
 
Foster M, Henman P. Paper presentation: ‘The politics of entitlement and personalisation: A perspective on the proposed National Disability Long-term Care and Support Scheme’ , Australian Social Policy Association Conference, 6-8 July 2011, University of New South Wales, Sydney.
 
Henman P, Foster M, Harrington R. Paper presentation: ‘Assessing the relative merits of disability service governance models’, Australian Social Policy Association Conference, 6-8 July 2011, University of New South Wales, Sydney.
 
Harrington R. Paper presentation:“No Fault’ National Injury Insurance: Can we afford it?’, Australian Social Policy Association Conference, 6-8 July 2011, University of New South Wales, Sydney.
 
Harrington R. Paper Presentation: ‘Motor Accident Insurance Scheme Design, Service System Capacity and Quality of Life after Severe Traumatic Brain Injury’ Occupation Therapy Australia 24th National Conference & Exhibition, 29 June – 1 July 2011, Gold Coast.

 

2010

Foster M. Keynote Address: ‘Investing in Personalised Lifetime Care and Support: Disability Reform in Australia’ University of York Social Policy Research Unit, 1 June 2010. UK.

Harrington R. Poster Presentation: ‘The compensation seeking process and individual outcomes after severe traumatic brain injury’. Australian Society for the Study of Brain Injury 33rd Annual Brain Impairment Conference, 6-8 May 2010, Surfers Paradise.

Harrington R. Oral Presentation: ‘CTP Insurance Scheme design – A driver of brain injury service system development?’ Australian Society for the Study of Brain Injury 33rd Annual Brain Impairment Conference, 7 May 2010, Surfers Paradise.

Harrington R. Invited Forum Participant:  Australian Peak Organisations Meeting for Discussion and Endorsement of a National Aids and Equipment Reform Agenda, 22 June 2010, Melbourne.

Harrington R. Presentation to the Productivity Commission inquiry into disability care and support. Public hearing 15 July 2010, Brisbane.

 

Other Activities

Henman P. Chair roundtable discussion: ‘Critical questions of design and operationalisation of the proposed National Disability Insurance Scheme’, Australian Social Policy Association Conference, 6-8 July 2011, University of New South Wales, Sydney.

Response to Productivity Commission Disability and Care Support, Draft Inquiry Report, on NDIS, May 2011
Foster M, Henman P, Harrington, R

 

Funding

The project is financially supported by the Australian Research Council (LP0883377), The Public Trustee of Queensland, and the Motor Accident Insurance Commission.     


For further information about the project, please contact Dr Michele Foster, or email lifetimecare@social.uq.edu.au
 

 

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