The
Meaning of "Genetic" Disorder Attribution for People in Families
with Disorders of Multifactorial Aetiology
(Lay title: What it Means to be in a Family Study of a
Complex Disorder)
Overview
Participants in studies of complex genetic conditions often express concerns about: 1) their wish to not pass on any genetic predisposition to their children, and 2) feelings of guilt and anxiety about having done so if their children become symptomatic and/or diagnosed with a genetic condition. This project aims to investigate how people involved in genetic studies understand, communicate about, and cope with the possibility that they, or someone in their family, have a medical disorder that could be influenced by genetics. It also aims to examine the experiences of people who have participated in genetic studies of common medical disorders.
OPPE Staff
Katherine Morley and Wayne Hall
Collaborators
Susan Treloar, Kellie Chenoweth and Sandy Taylor, School of Social Work and Applied Human Sciences, The University of Queensland
Status
Data analysis
Funding
UQ New Staff Research Start-up Fund (Grant to Susan Treloar)
Contact webmaster: oppe@uq.edu.au
Last updated: 16 August
2003